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Latest Update and it's all good news !
Today they let me come home from the 2nd round of chemo, it's all gone well and I've recovered quicker than last time, so far so good !
I found out earlier this week that my sister is a bone marrow match, so I've got a donor ! I've been referred for an urgent transplant, although it may still be 3 months away, depending on a few things. We haven't had much info about the transplant yet, as that will take place in Leeds, rather than my local hospital, so I'll have a few meetings over there first where they will explain it all. Pretty scarey stuff, but it does give me the best chance of long term remission.
On a slightly less exciting note, but important all the same, they've been experimenting on me !
I have long been told that I am allergic to penacillin, and that is how they've treated me so far, but it rules out quite a lot of powerfull antibiotics and during the transplant I'm probably going to need all they can give me. The thing is nobody in the family can actually say for sure that I've ever had a reaction to it. So finally we decided that whilst I was in hospital and recovering well, they'd just give me some and see what happened, and 24hrs and several doses nothing has happened, not a spot, so they're fairly confident now that I'm not actually allergic at all.
So that's where I am at the moment, they've effectively got me in a holding patern for the transplant, depending on how long I have to wait I may have to have more chemo in my local hospital, to make sure we keep the cancer in remission.
Oh, and I've got too much Iron in my blood, so I'm some medication to remove it, this involves a 12hr drip each night, so while I'm at home I've got to do this myself, strange thing is it turns you pee rusty !
They say the blood transfusions I've had have caused it, I'm convinced it's all the IrnBru I've been drinking !!!
Anyway, I've just been sat in our lovely garden, watching the butterflies and bees around the flowers, it's so nice to be back home !
Today they let me come home from the 2nd round of chemo, it's all gone well and I've recovered quicker than last time, so far so good !
I found out earlier this week that my sister is a bone marrow match, so I've got a donor ! I've been referred for an urgent transplant, although it may still be 3 months away, depending on a few things. We haven't had much info about the transplant yet, as that will take place in Leeds, rather than my local hospital, so I'll have a few meetings over there first where they will explain it all. Pretty scarey stuff, but it does give me the best chance of long term remission.
On a slightly less exciting note, but important all the same, they've been experimenting on me !
I have long been told that I am allergic to penacillin, and that is how they've treated me so far, but it rules out quite a lot of powerfull antibiotics and during the transplant I'm probably going to need all they can give me. The thing is nobody in the family can actually say for sure that I've ever had a reaction to it. So finally we decided that whilst I was in hospital and recovering well, they'd just give me some and see what happened, and 24hrs and several doses nothing has happened, not a spot, so they're fairly confident now that I'm not actually allergic at all.
So that's where I am at the moment, they've effectively got me in a holding patern for the transplant, depending on how long I have to wait I may have to have more chemo in my local hospital, to make sure we keep the cancer in remission.
Oh, and I've got too much Iron in my blood, so I'm some medication to remove it, this involves a 12hr drip each night, so while I'm at home I've got to do this myself, strange thing is it turns you pee rusty !
They say the blood transfusions I've had have caused it, I'm convinced it's all the IrnBru I've been drinking !!! Anyway, I've just been sat in our lovely garden, watching the butterflies and bees around the flowers, it's so nice to be back home !
